← VCE Data Analytics U3O2

HPP 1: collection of health information

Health Privacy Principle 1: only collect health information that is necessary, collect it lawfully and fairly, and tell the person why you are collecting it.

Part of: VCE Data Analytics - U3O2 - Analysis and Design — Module 97

Understanding HPP 1: collection of health information in VCE Data Analytics U3O2

What it does: An open, honest request without pressure or deception is a lawful and fair way to collect health information. This note informs the person of the purpose and who can see the data, which meets the informing requirement of HPP 1. The 'necessary information only' part of HPP 1 limits collection to what the project actually needs. Fair collection means no pressure or trickery, and people are told what the data is for. Under HPP 1, the diagnoses are not necessary for the research question, so they should not be collected. Retention and disposal of health records are covered by other principles, such as HPP 4. HPP 1 is about collection.

Common mistakes: HPP 1 says to collect only health information that is necessary. A footy team is not needed for care, so this field should be something relevant such as medications. HPP 1 requires health information to be collected lawfully and fairly. Secretly recording a person is unfair and may be unlawful, so the value should be FALSE.

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This module's key terms are also in a printable crossword (Modules 76–146) and word search (Modules 3–146).

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Learning
Duo
A school clinic app asks students for their blood type, but the app only tracks sports injuries. Does this follow HPP 1?
No, blood type is not necessary for the purposeYes, more health data is always better
Matches
Survey for a sports club fitness app asks: 'List all your past illnesses, medications and surgeries.'
↓
This collects far more health information than is necessary for the purpose, which breaks the 'necessary' requirement of HPP 1.
Applying
Meanings
Term
HPP 1
Meaning
Health Privacy Principle 1: only collect health information that is necessary, collect it lawfully and fairly, and tell the person why you are collecting it.
Practice
IF necessary AND lawful AND fair THEN
Testing
Gaps
HPP : collection of health information
Check Answer
Spots
2 name, date of birth
3 allergies, footy team

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Quick Questions

1. A school clinic app asks students for their blood type, but the app only tracks sports injuries. Does this follow HPP 1?
A. No, blood type is not necessary for the purpose ✓
B. Yes, more health data is always better
HPP 1 says an organisation should only collect health information that is necessary for its function or activity. Blood type is not needed to track sports injuries.
2. Which statement best matches HPP 1?
A. Collect only the health information you need ✓
B. Collect all health information just in case it is useful later
The 'necessary information only' part of HPP 1 limits collection to what the project actually needs.
3. A data analyst secretly records a patient's answers without telling them. Is this lawful and fair collection under HPP 1?
A. Yes, as long as the data is stored securely
B. No, collection must be lawful and fair, not secret or deceptive ✓
HPP 1 requires health information to be collected by lawful and fair means. Secret recording is unfair, and secure storage does not fix that.
4. When collecting health information, what must you do to follow HPP 1?
A. Tell the person why you are collecting it ✓
B. Wait until the analysis is finished before telling them
HPP 1 includes informing the person, such as the purpose of collection, at or before the time of collection.
5. Which collection method is fair under HPP 1?
A. A survey that pressures people into answering by hiding its purpose
B. A survey that explains its purpose and lets people choose to answer ✓
Fair collection means no pressure or trickery, and people are told what the data is for.

Match the Pairs

HPP 1 → Health Privacy Principle 1: only collect health information that is necessary, collect it lawfully and fairly, and tell the person why.
Collect only what is necessary → Only ask for the health information needed for the stated purpose, such as asking about allergies for a school canteen order but not the full medical history.
Collecting health information lawfully and fairly means no trickery, pressure or secret recording of the person. → Ask openly: 'Please tell us about any health conditions that affect this activity.'
The person must be told why their health information is being collected, who will see it and how to access it. → Form note: 'We collect your health details to plan safe camp meals. Only the camp nurse sees them.'
Survey for a sports club fitness app asks: 'List all your past illnesses, medications and surgeries.' → This collects far more health information than is necessary for the purpose, which breaks the 'necessary' requirement of HPP 1.
A researcher collects students' health details through a form with no explanation of why it is needed. → The students are not told why the health information is collected, so the informing requirement of HPP 1 is broken.

Key Term

HPP 1
Health Privacy Principle 1: only collect health information that is necessary, collect it lawfully and fairly, and tell the person why you are collecting it.

Fill in the Blanks

1. HPP 1: collection of health information
Hint: Type the number of this Health Privacy Principle.
2. IF info is necessary THEN collect(info)
Hint: Type the word for information you really need to collect.
3. collect health information lawfully and fairly
Hint: Type the word meaning in line with the law.
4. IF method is unlawful OR unfair THEN stop
Hint: Type the word that is the opposite of the fair collection HPP 1 requires.
5. IF collecting health information THEN tell person the reason for collecting
Hint: Type the verb for letting the person know why you are collecting their information.

Spot the Error

Question 1
A Clinic form fields:
B name, date of birth
C allergies, footy team
Line C — HPP 1 says to collect only health information that is necessary. A footy team is not needed for care, so this field should be something relevant such as medications.
Question 2
A purpose ← 'treat the patient'
B collect(allergies, history)
C method ← 'ask in person'
D secret_recording ← TRUE
Line D — HPP 1 requires health information to be collected lawfully and fairly. Secretly recording a person is unfair and may be unlawful, so the value should be FALSE.
Question 3
A patient arrives
B skip telling the patient why
C collect(health_info)
D store(health_info)
Line B — HPP 1 says the person must be told why their health information is being collected. This step must tell the patient the purpose instead of skipping it.
Question 4
A FOR each field on the form
B IF field is needed for care
C keep field
D ELSE keep field anyway
E END FOR
Line D — Fields that are not necessary must not be collected under HPP 1. The ELSE branch should remove the field, not keep it.
Question 5
A DISPLAY 'Why we collect this'
B DISPLAY 'Who is collecting'
C DISPLAY 'You cannot see it'
Line C — When collecting health information, HPP 1 expects people to be informed, including that they can access their own information. Telling them they cannot see it is wrong.

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